Patricia Berne

Patricia "Patty" Berne (January 21, 1967 – May 29, 2025) was an American writer, performance artist, director, and disability justice organizer. Berne was founding member of the disability justice movement and framework,[2][3][4] and was the co-founder of Sins Invalid, a disability justice-based performance project.[5][6]

Biography

Berne was born in 1967 in San Francisco to Sugako Berne, a Japanese immigrant, and Maurice Berne, a Haitian immigrant.[7] Berne had three sisters, Chieko Therese Tomasulo, Simone Billings, and Mary Bow.[8] Berne was born disabled and was told that they would not live past the age of 16.[9] Berne used they/she pronouns and identified as queer.[7][10][11]

Berne began college aged 16 at the University of California, Berkeley. She joined Students Against Intervention in Central America.[12] Berne joined protests on campus and was arrested at one. Their charges were soon dismissed, which Berne took issue with, as it was due to the court being inaccessible to wheelchair users. Using the discriminatory dismissal, Berne was able to get the charges dismissed for every protester.[7]

Berne has been trained in clinical psychology.[13][14]

Career

Disability Justice Movement

ركزت بيرن على العمل في مجال الدفاع عن حقوق ذوي الإعاقة والمقاومة من خلال الفنون. [ 5 ] [ 15 ] وقد كانت بيرن رائدة في حركة العدالة لذوي الإعاقة، إلى جانب مناصرين آخرين - ميا مينغوس ، وليروي إف. مور جونيور ، وإيلي كلير ، وسيباستيان مارغريت، وستايسي ميلبيرن ، ومجموعة العدالة لذوي الإعاقة - في كاليفورنيا في أوائل العقد الأول من القرن الحادي والعشرين. [ 7 ] [ 16 ] [ 17 ] [ 18 ] وكان هدفهم بناء حركة شاملة ومتداخلة لذوي الإعاقة، مصححين النظرة التي تركز على البيض وقضية واحدة التي اتسمت بها حركة حقوق ذوي الإعاقة السابقة . [ 9 ] [ 7 ] [ 19 ]

شرح بيرن لاحقاً سبب أهمية العدالة لذوي الإعاقة وكيف تختلف عن حقوق ذوي الإعاقة في مشروع رؤية الإعاقة :

أعتقد أن حركة حقوق ذوي الإعاقة حققت تقدماً هائلاً في تقنين الحقوق القانونية للأشخاص ذوي الإعاقة ، وخاصةً فيما يتعلق بالأشخاص ذوي الإعاقة الحركية . في الوقت نفسه، أُفضّل أن أعتبر هذه التقدمات بمثابة محطات مفتوحة... قد تصل بك إلى حدٍّ معين، ثم مع ازدياد الوعي نتيجةً لفهم جديد ومشاركة جديدة في الحركات،... يبدأ جيل جديد، وتتطور الحركة من جديد. يُدرك مفهوم عدالة ذوي الإعاقة الإعاقة ضمن سياق العدالة الاجتماعية، مُدركاً أننا جميعاً نعيش في ظل علاقات قوة متعددة. فنحن نعيش في ظل هيمنة العرق الأبيض ، وفي ظل النظام الأبوي ، وفي ظل الرأسمالية ، وفي ظل المعيارية الجنسية ، وفي ظل التصنيفات الثنائية المفروضة. كما أننا نعيش في ظل النزعة التوسعية ، وتتفاعل كل هذه أشكال القمع المختلفة ، والقمع الهيكلي، مع بعضها البعض، وبدلاً من التركيز على جانب واحد...

باتريشيا بيرن، مشروع رؤية الإعاقة ، [ 20 ]

إلى جانب تعريف وتحديد ملامح الموجة الثانية من مناصرة حقوق ذوي الإعاقة، [ 21 ] قدم بيرن فكرة وإطار عمل العدالة لذوي الإعاقة لقادة الحركة المستقبليين، بمن فيهم أليس وونغ . [ 22 ] حدد بيرن 10 مبادئ أساسية للعدالة لذوي الإعاقة في عام 2016: [ 4 ]

  1. التقاطعية ؛
  2. القيادة من قبل الأفراد والمجتمعات الأكثر تضرراً؛
  3. السياسة المناهضة للرأسمالية ؛
  4. Cross-Movement Solidarity;
  5. Disabled people are Whole;
  6. Sustainability;
  7. Cross-Disability Solidarity;
  8. Interdependence;
  9. Collective Access(ibility); and
  10. Collective Intersectional Liberation.

For Berne, disability justice also required decolonizating the body[10][23] and language justice.[11] Berne also advocated for immigrants and asylum seekers, focusing on those fleeing war, violence, or torture. She also worked directly with the Haitian and Palestinian communities, victims of sexual assault and violence, incarcerated youth, and Guatemalan democratic advocates.[24][25][26][13]

Berne developed a found family with other disability justice advocates and artists, calling Micah Bazant, Mordecai Cohen Ettinger, Jolanta Kata, and Andrea Gruebele their "chosen siblings."[8][9][7]

Berne and Maria R. Palacios founded the Crip Survival Network to support disabled people displaced by climate change and climate disasters.[7][26][27]

Art and Advocacy

In 2005, Berne co-founded Sins Invalid with Leroy F. Moore Jr.[5][28] Berne would later serve as the Executive Director and Artistic Director [29] of "a disability justice-based movement building and performance project" led by disabled people of color.[30] Berne directed 11 shows at Sins Invalid.[24] A central question in much of Berne's work at Sins Invalid surrounded eroticism (cripping sex)[31][25] and embodiment.[23] Berne explained to HuffPost that "As a person with a disability, I don't have to mimic able-bodiedness in order to be sexual. I can experience my sexuality as a crip, as someone who fully occupies a non-normative physical space. And part of that movement to fully living in one's own experience is naming and resisting dehumanization."[31]

In 2014, Berne and Sins Invalid boycotted the Vancouver Queer Film Festival and began Disability Justice for Palestine in protest of the festival's "pinkwashing" of Israel during the 2014 Gaza War. They released a statement that their "organization included many people of color with intimate connections to genocidal violence, and a number of Jewish people" and that they "were angered and disappointed to see the print ad accepted by the VQFF that attempts to portray the state of Israel as a friend to LGBTQ communities, particularly in the current moment as the people of Palestine are living through hell and dying in staggering numbers daily."[32] Sins Invalid have also had campaigns on Language Justice is Disability Justice, Disability Justice is Climate Justice, Reproductive Justice is Disability Justice, and advocating against the prison industrial complex and police violence.[33]

Berne was also 2020 Ford FoundationDisability Futures Fellow.[11][34] In 2009, Berne was awarded the Empress I Jose Sarria Award for Uncommon Leadership by the National Gay and Lesbian Task Force.[10] In 2015, Berne was a given White House Champions of Change Nomination, but she chose to decline.[8]

Berne was a long-time board member of San Francisco Women Against Rape.[7][8][35] Berne also served on the founding boards of the Elders of Peacock Rebellion and Health Justice Commons.[8]

Berne was a prolific contributor to the public discourse about disability justice. Disability justice activist and artist Lateef McLeod called Berne, "mother of disability justice and this second wave of the disability movement."[9] Alice Wong called them "a revolutionary, an elder, and an oracle."[19]

Books

Selected Articles

Filmography

Year Title Role Notes Source
2013Sins Invalid: An unshamed claim to beautyCo-ProducerDocumentary, Performance Art, 32 min[36]
July 13, 2014Fixed: The Science/Fiction of Human EnhancementCast (as Self)Documentary[37]
2021Loving With Three Hearts / Amar con tres corazonesCo-ProducerDocumentary, 39 min, in English, Spanish, ASL[38]

Awards

YearAwardAwarding BodyReference
2025Rest and Care Sabbatical AwardRainin Foundation[8]
2021Unsettling Dramaturgy Award[8]
2020Disability Futures FellowshipFord Foundation, Andrew W. Mellon Foundation[11]
2020GranteeArt Matters Foundation[39]
2018100 HonoreeYerba Buena Center for the Arts[40]
2009Empress I Jose Sarria Award for Uncommon LeadershipNational Gay and Lesbian Task Force[10]

See also

Further reading

  • Kafai, Shayda (December 7, 2021). Crip Kinship: The Disability Justice & Art Activism of Sins Invalid. Arsenal Pulp Press. ISBN 978-1-55152-864-9.
  • Ray, Sarah Jaquette; Sibara, Jay (June 1, 2017). Disability Studies and the Environmental Humanities: Toward an Eco-Crip Theory. University of Nebraska Press. ISBN 978-0-8032-7845-5.
  • Tastrom, Katie (May 28, 2024). A People's Guide to Abolition and Disability Justice. PM Press. ISBN 979-8-88744-040-8.

References

  1. "The Feministing Five: Patty Berne". Sins Invalid.
  2. Heller, Tamar; Harris, Sarah Parker; Gill, Carol; Gould, Robert (2018-12-31). Disability in American Life: An Encyclopedia of Concepts, Policies, and Controversies [2 volumes]. ABC-CLIO. ISBN 978-1-4408-3423-3.
  3. Ray, Sarah Jaquette; Sibara, Jay (2017-06-01). Disability Studies and the Environmental Humanities: Toward an Eco-Crip Theory. University of Nebraska Press]. ISBN 978-0-8032-7845-5.
  4. 12Berne, Patty; Langstaff, David; Moore, Leroy F. Jr; Lamm, Nomy; Milbern, Stacey; Nishida, Akemi; Ulanday Barrett, K; Levins Morales, Aurora; Piepzna-Samarasinha, Leah Lakshmi; et al. (Sins Invalid) (2016). Skin, Tooth, and Bone: The Basis of Movement is Our People: A Disability Justice Primer(PDF) (2nd ed.). Berkeley, California: Sins Invalid. pp. 16–20. ASIN B0DM2G9QPP. doi:10.1080/09688080.2017.1335999.
  5. ١ ٢ ٣ كوبيت، أليسون (٢٠١٩-٠٧-٠٦). "الذاكرة المتحدية كعدالة لذوي الإعاقة: مقابلة مع باتي بيرن من سينز إنفاليد" . المجلة الأمريكية الفصلية . ٧١ (٢): ٤١٥-٤٢٣ . doi : 10.1353/aq.2019.0036 . ISSN 1080-6490 . S2CID 198598506 .  
  6. "باتريشيا بيرن" . بوابة إعلامية للمتحولين جنسياً . تم الاطلاع عليه بتاريخ 25-07-2026 .
  7. 1 2 3 4 5 6 7 8 لوتيرمان، سارة (12 أغسطس 2025). "في الحياة والفن، مهدت باتي بيرن الطريق أمام ذوي الإعاقة للنجاح" . مجلة القرن التاسع عشر . تاريخ الاسترجاع: 24 يوليو 2026 .
  8. 1 2 3 4 5 6 7 "باتريشيا "باتي" بيرن في الذاكرة والقوة 21 يناير 1967 - 29 مايو 2025" (ملف PDF) . مركز إيلا بيكر .
  9. 1 2 3 4 كوكلا، إليوت (2025-08-07). "كانت الراحلة باتي بيرن قائدةً ذات رؤية ثاقبة في حركة العدالة لذوي الإعاقة" . تروث آوت . تم الاطلاع عليه بتاريخ 24-07-2026 .
  10. 1 2 3 4 وونغ، أليس. "مقابلة مشروع رؤية الإعاقة: باتي بيرن وأليس وونغ" . مشروع رؤية الإعاقة .
  11. 1 2 3 4 "باتي بيرن تتحدث عن الأرض كنقطة انطلاقنا، كما أجرت معها بيانكا إي لوريانو مقابلة" . مؤسسة فورد . تاريخ الاسترجاع: 24 يوليو 2026 .
  12. "باتي بيرن، حاضرة!" . مجلة موفمنت جينيريشن . تم الاطلاع عليه بتاريخ 24-07-2026 .
  13. 1 2 "باتي بيرن" . فنانو الولايات المتحدة . تم الاسترجاع في 24-07-2026 .
  14. "باتي بيرن" . مشروع مناهضة تحسين النسل . تم الاطلاع عليه بتاريخ 25-07-2026 .
  15. بييبزنا-ساماراسينها، ليا لاكشمي (30 أكتوبر 2018). العمل الرعائي: حلم العدالة لذوي الإعاقة . فانكوفر: دار نشر أرسنال بَلْب . ISBN 978-1-55152-739-0. OCLC 1066114954 . 
  16. Deerinwater, Jen; Ho, Sandy; Thompson, Vilissa; Wong, Alice; Erevelles, Nirmala; Morrow, Marina (2023). "A Conversation on Disability Justice and Intersectionality". In Rioux, M.H.; Viera, J.; Buettgen, A.; Zubrow, E. (eds.). Handbook of Disability. Springer, Singapore. pp. 1–22. doi:10.1007/978-981-16-1278-7_95-1. ISBN 978-981-16-1278-7.
  17. "Disability Justice". Woodhull Freedom Foundation. 2021-11-01. Retrieved 2026-07-24.
  18. "What is Disability Justice?". Associated Students Commission on Disability Equity. University of California, Santa Barbara. Retrieved 2026-07-24.
  19. 12Wong, Alice (2025-08-09). "In Remembrance of Patty Berne, January 21, 1967 – May 29, 2025". Disability Visibility Project. Retrieved 2026-07-25.
  20. Wong, Alice. "DVP Interview: Patty Berne and Alice Wong". Disability Visibility Project.
  21. Ramirez-Stapleton, Lissa; Stephens-Peace, Kat; Peña, Edlyn (2025). "The Second Wave Is Here: Grounding Disability Justice in Higher Education". New Directions for Higher Education. 2025 (211): 5–11. doi:10.1002/he.70002. ISSN 1536-0741.
  22. "Alice Wong and Patty Berne: Two UW lectures moderated by CREATE researchers". University of Washington. January 29, 2024.
  23. 12Berne, Patricia; Lewis, Jamal T.; Milbern, Stacey; Shanks, Malcolm; Vaid-Menon, Alok; Wong, Alice (2018). ""Beauty Always Recognizes Itself": A Roundtable on Sins Invalid". Women's Studies Quarterly. 46 (1/2): 241–252. ISSN 0732-1562.
  24. 12"In Memoriam". Sins Invalid. Retrieved 2026-07-24.
  25. 12Rose, Ashton (2025-09-25). ""Is This Desire Safe?" Remembering the Work of Patty Berne". Ashton Rose. Retrieved 2026-07-24.
  26. 12Watts Belser, Julia (March 1, 2024). "We Save Each Other: Disability Activism, Climate Crisis, and the Power of Fighting with Love". Disability And Climate Change Public Archive Project. Georgetown University. Retrieved 2026-07-24.
  27. Watts Belser, Julia (January 23, 2023). "Crip Survival Networks: Disabled and Undocumented Communities Resisting Ableism and Abandonment". Disability And Climate Change Public Archive Project. Georgetown University. Retrieved 2026-07-24.
  28. Moore Jr., Leroy F. "Art, Activism and Sexuality of Self — Sins Invalid". Sins Invalid. Archived from the original on 2024-09-14. Retrieved 2026-07-24.
  29. "Our Team". Sins Invalid. Retrieved 2020-12-05.
  30. "About Sins". Sins Invalid. Retrieved 2026-07-24.
  31. 12Silverberg, Cory (2011-03-21). "When it Comes to Sex, Are Your Sins Invalid?". HuffPost. Retrieved 2026-07-24.
  32. "Disability Justice for Palestine". Sins Invalid. Retrieved 2026-07-24.
  33. "Resources". Sins Invalid. Retrieved 2026-07-24.
  34. "Disability Futures Fellows". Ford Foundation. Retrieved 2020-12-05.
  35. "MARGINAL BODIES". Queer Cultural Center. Retrieved 2026-07-25.
  36. "Sins Invalid". Newday Films.
  37. "Fixed: The Science/Fiction of Human Enhancement". IMDB.
  38. "Loving With Three Hearts / Amar con tres corazones". Newday Films.
  39. "Patty Berne | Grantees". Art Matters Foundation. Retrieved 2026-07-25.
  40. "Patty Berne". Yerba Buena Center for the Arts. Retrieved 2026-07-25.